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Right pneumo thorax

I had a rough day. I went to a spine specialist yesterday morning to get more help with the back pain I’ve been dealing with for some time. The doctor gave me a steroid injection. On the way out I felt cold and was short of breath. I stopped at St. Louis and a friend (thanks Amy) called the doctor. We to a near-by urgent care. An x-ray revealed that my right lung was partly collapsed (Pneumothorax) – the injection had slightly punctured it. The next stop was the ER (thanks Sandie for watching the kids). There we learned my oxygen levels were normal so it wasn’t severe. It was just very very scary. I did a lot of crying and it was very hard to breathe. I couldn’t eat becuse it was too hard to breathe and eat at the same time. Just getting up to go to the bathroom left me winded and my heart racing. I was on supplemental oxygen overnight which helped remove the excess air around the lung. Friends Elizabeth and Lauren came by last night to keep me company while I waited for Adam to come back to the hospital.

They took another x-ray this morning to see how things are progressing. We’ve been told in my situation the body will normally work itself out. The extra oxygen expanded my lungs and things look good. They are sending me home with a volumetric exerciser to take breaths and help expand my lungs to prevent pneumonia and other complications.

The doctor who punctured my lung came by this morning and apologized to Adam and I. He took responsibility and agree to take financial responsibility as well. That was very kind of him.

Thanks to all for you prayers!

The doctor has been in contact with us and is very apologetic. He’s
perplexed how it happened as he does the routine often.

Category: Health  2 Comments

Family Update

It has been a while since I posted a family update and a lot has been happening these past couple of months.

Adam is now three weeks into his chocolate making class. It’s been a lot of fun and very educational for us both. I have thoroughly enjoyed all the chocolate tasting sessions we’ve had. We just finished a session on tasting chocolate made with beans from the different growing regions. Adam did better than I on placing the region in a blind taste test–which I totally attribute to his beer tasting palate. But I did better on the first session in determining the percentage of cocoa in the bar. I never realized chocolate can be so complex. It has been exciting learning the nuances of the flavors and I will never taste chocolate the same way again.

The kids are winding down with school. We are not starting anything new until we have had a thorough restful, fun break. Hopefully the kids will start swim lessons soon. And this summer I hope we can sit back and enjoy reading and learning about art. I have some great art books that I recently purchased and one on loan that I’m very excited to start reading with the kids. And on these hot summer days it will be refreshing to go to a cool art museum and bask in beauty. Therese and Fulton have a couple choir concerts this week and next. And Therese’s religious ed classes are over with her first communion coming up in TWO DAYS!!! I have most of curriculum purchase for next school year. It’s so exciting to get the new stuff.

Cecilia is still not communicating with words. However she is a master at communicating non-verbally without signs. So we will be starting to get some intervention with the Early Childhood Intervention program. She had her official speech evaluation this morning. She’s on par or above where she should be in everything except her verbal skills. Hopefully this summer with less school on the schedule, we can focus more on getting her some verbal tools.

The garden has been a nice side hobby. It has been wonderful to just go outside and grab some lettuce for my sandwich or a salad. We’ve been enjoying some yummy beets, beet greens, swiss chard and spinach too. Thanks to the Politos, I learned the difference between beet greens and swiss chard.  Every year, I learn something new about gardening. Our compost pile is doing well too…I have a squash plant and probably a potato growing in there. Now if we can just control the ants in our yard, we’d be good.

I spoke to my sister today and she is doing well. Her bone marrow transplant was 2 weeks ago and she hit rock bottom last week with her immune system wiped out. Her stems cells have graffed and her white blood cell count is on the rise. Praise be God! She’s losing hair but she shaved most of it off before her last round of chemo. She has a great sense of humor and enjoys posting a “hat of the day” on facebook. Her light and strong heart is inspiring to me.

I’ve had my own health concerns that I’ve been working on getting answers to these last couple of months. It’s difficult sometimes to take the time to focus on myself and my health when I have 5 other people I need to look after. And before we can consider growing our family anymore, I need the peace mind, body, and soul that I can take care of these precious gifts that God has blessed us with. For over a year, I’ve had a chronic pain in my shoulder and chest. After seeing my GP a month ago and ruling out a heart condition for the second time, I had some x-rays taken of my chest. He didn’t see anything wrong with me. A friend of ours recommended I see a chiropractor that our parish priest and a couple of other people recommended. He immediately noticed an asymmetry in my back and pointed out the rib in my back which wraps around to the front part of my chest where I have been feeling this pain. Today I went in for my 3rd adjustment and took him the x-rays that I had from a month ago. And my spine is completely out of whack. He said with some more adjustments and massage therapy, he should be able to help me! I could cry…It’s refreshing to know that the pain was not all in my head and that there is something legitimately wrong with me.

At the same time I went to my GP, I went to the new NaProTechnology doctor in town, at the Vitae Clinic. My Creighton Model charts have been weird and I had some concerns about how I feel on a monthly basis. I haven’t felt myself for sometime and I have chalked it up to the changes in my life and vocation. At the same time, I want to be the mom and wife God created me to be, and I didn’t feel I was doing that. Dr. Kalamarides is an amazing doctor and a gift to our city and women’s health. He reviewed my charts and recommended I do a hormone evaluation post-peak (post-ovulation). I did and we discovered my progesterone is low all post-peak! Wow! This completely explains my two miscarriages in the past 7 years and my need for progesterone treatment during my pregnancies. What a great blessing to know that I’m not going crazy! I start treatment this month and hopefully things will get better. And if God is so great to bless us with another baby soon, then my body will be in a place to sustain the pregnancy early on.

And finally at the same time that I started seeing these physical doctors, I also knew I needed a soul doctor. So I’ve started seeing one of our associate pastors for spiritual direction. It’s been so helpful. My great desire is to live out my vocation to the fullest as a daughter of God. I fall short many times every day. I can say my prayer life has been better than it has been in years. My Lenten practices have carried over into Easter. In fact our family prayer life has continued to blossom this Easter. We have been enjoying our Garden of the Good Shepherd readings and family prayer/rosary time at night.

A Chip off the Old Tub

Last Friday Cecilia was toddling around the bathroom when she fell and chipped both front teeth on tub. We just got back from the pediatric dentist. She broke her teeth pretty significantly. Her upper left front tooth is chipped almost all the way to the nerve. The upper right front is not as bad but still significant.

The dentist is going to monitor it for now and we have another visit in two months. Repairing the teeth would require putting Cecilia under general anesthesia and doing a root canal (since the break was so close to the nerves) and a crowning. For now we’re just going to watch her and those teeth and see what happens over the next few months.

Category: Family, Health  One Comment

Smoothie Anyone?

Tomorrow I go back to a liquid/soft-food diet. Hopefully not more than a week this time. I’m at the last stage of my oral treatment and will undergo the first of two gum graft procedures to address severe gum recession. It was already pretty bad and it worsened in time after my surgery.

How many pounds do you think I’ll lose this round? :)

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New developments in my breastfeeding drama

Well, after 5 days up of pumping every three hours around the clock, I honestly see no difference in my milk supply. If anything it seems like I have less milk. Very discouraging for me. At Cecilia’s last weight check yesterday she’s still showing an ounce gain per day in her weight. That’s good at least. The midwife suggested we check my thyroid level because apparently abnormal thyroid levels can affect milk supply. She called today and indeed my levels are low.

So I called around and thanks be to God an endocrinologist can see me on Tuesday morning. I don’t know if this is going to “solve” my milk supply problem or if it will be too late by the time the meds kick in. This is the last thing I know to try because nothing else is working. And if it doesn’t work, I think I’ll be at peace that I tried my best to give our daughter the best.

I have to say this has been a very interesting journey. I’m thankful that I ended up at the Birthing Center. The midwives have all been great. I especially like that they don’t totally freak out about everything. I do enough of that–so do most doctors. Thyroid dysfunction was never even mentioned neither by our pediatrician nor my OB when I was nursing Gianna and she was slow to gain weight early on. So I’m glad they had the expertise to even suggest that I get my thyroid levels check.

Nothing in the last month has gone the way that I had “planned” which is why I suppose I should leave the planning to God as He knows what’s best for us. I will continue to pray for His will and the grace to endure whatever blessings He sends our way.

Category: Family, Health  One Comment

I PASSED!

I passed my glucose test! At 28 weeks with each pregnancy a woman gets tested for gestational diabetes. With a family history of diabetes and having failed my first test when I was pregnant with Gianna, I’ve been concerned (more like obsessed) that I would end up with gestational diabetes.

So for the last 2 months I’ve stepped up my exercising. I get up at 6 a.m. almost every morning to go walking. I walk between 2-3 miles a day. It’s been a great way to enjoy some quiet time before the sun burns off my flesh. It’s also be a wonderful treat to pray and enjoy my time with God and reflecting on how my day ‘should’ go before I have to face the demands of my vocation when I walk in the door. We’ve seen a significant decrease in dessert nights too. Now were down to one night a week–usually Sunday. Well, I’m mostly down to one night a week. Adam is still nursing four tubs of ice cream in the freezer! And the kids and I enjoy homemade juice popsicles occasionally on really hot days. I also learned some important dietary information to balance out our meals and my carbs and protein better. These changed certainly have made a difference and when I deviate from them I feel it.

Thank you, Jesus, for helping me to perservere!

Category: Health  5 Comments

Food Allergies?

A friend of mine today mentioned in passing a relatively new blood test for food allergy testing called Bloodprint. Bloodprint is done by a ImmunoLabs.

ImmunoLab claims to provide a very reliable test for food allergies. Other blood tests done in labs to test food allergies tend to have very low reliability rates–even when the blood sample is split and tested twice, results are not consistent. This friend who was telling me about it has two daughters and nieces that were tested. One neice was breaking out in hives and they didn’t know why. When she had a Bloodprint test done, they discovered she was allergic to gluton and lactose. Since eliminating these from her diet, she hasn’t broken out in hives.

ImmunoLabs says that upto 95% of people are allergic to some food but most of the time it isn’t toxic. However, food allergies could cause more than just skin rashes or hay fever symptoms. Infertility, irregular cycles, IBS, ADD and ADHD, and even type II diabeties could be related to a food allergy.

So if you or someone you is suffering from a food allergy, you might want to investigate Bloodprint and ImmunoLab further.

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Good News from the Surgeon

Nothing but good news from my surgeon as I had one of my regular visits today.

  • My opening has increased 5mm to a total of 27mm from my previous visit. The goal is 40mm. My muscles are recovering from the trauma they underwent during surgery so I have to work my way back up to a normal opening.
  • I’m getting more feeling back in my chin. I’d say about 50% of the feeling has returned.
  • The J-hook was removed. Some of you may have noticed a little hook hanging down in front off my upper teeth. Well, it used to be above the gum line and since then has descended which meant it was time to come out. It was used to hold a rubber band to keep the upper and lower jaws together in the early stages of recovery. I’ll leave it to your imagination where the other end of the hook was routed.

    There was a moment of humor. I asked the doc if he was going to apply any anesthetic before removing it. He said, “Well, you can endure the few seconds of pain from either the anesthetic needle or by just me pulling it out.” My response: “Pull away.”

  • My teeth are not rotting away. I had a scare for the past few weeks where it appeared my teeth were becoming translucent. To my relief it was only an illusion. It happened to be only a thin film of gray matter deposited by the medicinal mouthwash I used for the first 3 weeks. The doc demonstrated by scraping a bit away showing the white enamel underneath. Thankfully a good cleaning will remove it, but it’ll probably have to wait until I get my orthodontics off.
  • And last but not least, adios to the liquid diet! I’m free now to eat soft foods that require minimal chewing. I’m still holding out for Whataburger but I’ll take Rudy’s extra-moist brisket in the meantime. ;)
Category: Health  4 Comments

Health Insurance

Sometimes I think explaining the Holy Trinity is far easier than explaining how health insurance works.

Truly, I spent the greater part of the morning on the phone with Blue Cross Blue Shield of Texas trying to figure out what they mean by “maximum out-of-pocket” a.k.a. “co-insurance stop loss.”  It seems rather simple and indeed something that should be self-explanatory and work in favor of the insured.   The easy definition is as follows:

Coinsurance is expressed as a percentage or pair of percentages generally with the insurer’s portion stated first. The maximum percentage the insured will be responsible for is generally no more than 50%. Coinsurance indicates how an insurer and an insured will share the costs of a bill that exceeds the insurance policy’s deductible up to the policy’s stop loss. Once the insured’s out-of-pocket expenses equal the stop loss the insurer will assume responsibility for 100% of any additional costs.”

What this nice definition fails to mention is that the out-of-pocket expenses are only considered up to the what the insurance company (in our case BCBS) accepts as an “allowable amount” for the medical expense.  If the insured on a PPO goes in-network for a medical procedure, the “allowable amount” for the procedure is agreed upon by the provider (e.g. the doctor) and the insurance company well in advance.  The insured meets the deductible, pays their portion of the co-insurance, and reaches the stop loss without paying unreasonable amounts of money.  HOWEVER, if the insured goes out-of-network (as we did for Adam’s surgery since the doc was the only one in a reasonable driving distance to do this procedure) all bets are off.  The provider can charge what s/he wants. The insurance company, at best, will only still pay the allowable amount for an in-network doctor which is in our case was only 1/5 of the actual cost of the procedure.  AND the deductible, co-insurance, and stop loss (if there is one) is ONLY applied to that “allowable amount,” not the total charges.   The insured can get “balance billed,” as we did, and pay the entire portion the insurance company does not pay.

At the end of the day it all really stinks. But it’s far better than socialized health care.

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Two weeks down…

4 to go… of pureed soups for Adam.  His weight has leveled off and perhaps those extra ice creamy milk shakes are slowly adding back the pounds.

Thankfully we received more clarification on the procedure the surgeon is doing on Thursday.  Some of you may remember that Adam had jaw joint surgery about 6 years ago before we were married.  Dr. Nelson, the orthodontist,  said that wearing the rubber bands causes additional stress on the jaw joint and he wants to get Adam off the rubber bands as quickly as possible.  Adam’s two pairs of back teeth that still don’t touch need to be moved together more quickly.  In order to do that, one of the plates on his left side will be cut–not removed entirely.  This will allow those teeth to be pulled down in 3-4 months instead of 6.  The procedure should take less than an hour and Adam will be knocked out.  Dr. Nelson says it’s equivalent to having wisdom teeth remove.  Adam’s will not regress in his recovery but is still on course to continue the liquid diet for another 4 weeks before he can start on mushy food.  His goal–to have a piece of Gianna’s birthday cake!

Overall we’re starting to get back into the groove of life.  Despite what the blog reads, we haven’t totally be obsessing about Adam’s jaw.  The meals that people have brought certainly have helped and made meal time much easier.  Although, I can’t wait until Gianna is a year old and we can add in all those allergy related foods in her diet that are off limits now!!

Therese has been practicing her piano (on her own) and has mastered Bingo and Yankee Doodle.  Perhaps Adam can put up one of the videos or teach me to do it.  (hint hint sweetheart) Yesterday he picked up the next set of piano books.  We’re officially starting school next week and I’ve expanded our school area in what was once our breakfast nook.  I’ll be finishing up this week.  The kids and I are really excited.  Fulton has even expressed interest in learning to read.  (We’ll see if that happens…I won’t be pushing him.) Gianna’s a force to be reckoned with and wanting a part of big sister’s and big brother’s action–much to their dismay at times.  The cutest thing she says is “uh oh” when something falls.  She’s still not sleeping through the night, but sometimes I am! :) She made it from 8:30 p.m. to 6 a.m. today! That was a major breakthrough…and I and her roommate (Therese) just ignored the 4:30 a.m. episode.

Category: Family, Health  One Comment